Elizabeth Amoaa, a distinguished advocate and trailblazer often described as a gynaecology changer and popularly known as Special Lady is an ambassador for the ENDO1000 Project, Amoaa lends her voice, experience and vision to a research initiative that promises not only better health outcomes but also renewed hope for those navigating the daily challenges of endometriosis.
The University of Edinburgh’s ENDO1000 Project, based within the Institute for Regeneration and Repair and led by Professor Andrew Horne, is one of the most ambitious studies ever undertaken to transform the landscape of endometriosis research.
Its central aim is to recruit 1,000 individuals diagnosed with endometriosis and follow them over two years, collecting rich streams of both biological and real-world data.
By combining patient-reported information, wearable technology and biological samples, the project seeks to close long-standing gaps in diagnosis, treatment and personalised care for a condition that affects millions worldwide.
Endometriosis affects around 1 in 10 people assigned female at birth, yet diagnosis can take years, leaving many without answers or effective care.
Treatments are often generic rather than tailored and the condition’s complexity is compounded by gaps in understanding how lifestyle, genetics and environment interact.
By leveraging digital health tools, biological sciences, and machine learning, ENDO1000 represents a turning point in how endometriosis is studied and understood.
Its findings hold the potential to empower clinicians, inform health policies and most importantly, transform the lives of patients.
Elizabeth Amoaa has long been recognised for her bold advocacy and innovative approach to women’s health issues.
Her work has challenged taboos, redefined narratives and created new spaces for dialogue on gynaecological conditions that are too often overlooked.
As an ambassador for ENDO1000, she embodies the project’s vision of change, ensuring that research is not only about data but about people, voices and lived experiences.
Her involvement underscores the human dimension of the project, bridging the gap between world-class science and the communities it seeks to serve.
Elizabeth Amoaa is the founder of Speciallady Awareness NGO in Ghana and Speciallady Awareness Global in UK.
With her commitment and influence, Elizabeth Amoaa is helping to spotlight endometriosis as a global health priority and to advance solutions that can reshape the future of care.
For more information on the project visit
www.endo1000.com
